Product Description
Thousands of people suffer from Huntington's disease across the world. Many people are unaware that they even have it. Huntington's disease is a genetic, neurodegenerative disorder, usually ending in death. Although science has made tremendous strides toward understanding the brain, there is still a great deal to learn. Soon after his brother was diagnosed with HD, in 2009, James Valvano also received the same diagnosis from his doctor. If you were given the opportunity to depict your own death, would you be able to? James decided to answer that question, and wrote his own personal ending: a story which depicts the trials and tribulations he experienced before the disease took his life. James takes us on a delicate and intimate journey, one expressing the physical, emotional, and psychological challenges an individual with Huntington's disease experiences. Who knows what the future holds? What is the meaning of life? What happens to us in the end? Although fictional, One With the Blue, is a journal filled with many of James' actual experiences and core beliefs. One With the Blue is his story—his future journey.